NHS National data opt out

Opting out of NHS Digital collecting your data (Type 1 Opt-out)

If you do not want your identifiable patient data (personally identifiable data in the diagram above) to be shared outside of your GP practice for purposes except for your own care, you can register an opt-out with your GP practice. This is known as a Type 1 Opt-out.

Type 1 Opt-outs were introduced in 2013 for data sharing from GP practices, but may be discontinued in the future as a new opt-out has since been introduced to cover the broader health and care system, called the National Data Opt-out. If this happens people who have registered a Type 1 Opt-out will be informed. More about National Data Opt-outs is in the section Who we share patient data with.

NHS Digital will not collect any patient data for patients who have already registered a Type 1 Opt-out in line with current policy. If this changes patients who have registered a Type 1 Opt-out will be informed.

If you do not want your patient data shared with NHS Digital, you can register a Type 1 Opt-out with your GP practice. You can register a Type 1 Opt-out at any time. You can also change your mind at any time and withdraw a Type 1 Opt-out.
Data sharing with NHS Digital will start on 1 September 2021.

To opt out please download a form and hand it into reception or send it to us via our ask-the-reception-a-question/button.

For the opt out form and more information please visit:

www.digital.nhs.uk/general-practice-data-for-planning-and-research

The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning. There have been posts on social media with false information about opting out of sharing your data with the NHS.

Here’s what you need to know:

  • There is no 30 September deadline for opting out of sharing your data. You can opt out at any time.
  • NHS Digital will never sell your data.
  • There are strict rules about how NHS can use your data. It’s only shared securely and safely.
  • Shared data helps the NHS. It has been used to find the first treatment for coronavirus and for vaccine research.

For the correct information please visit www.digital.nhs.uk/national-data-opt-out